מרצים אורחים

Lieven Lagae is Full Professor and Head of Paediatric Neurology Department at the

University Hospitals of Leuven, Belgium. He has a particular clinical and scientific interest in childhood epilepsy and is involved in many research projects including zebrafish epilepsy models, brain stimulation, preventive treatment in TSC,  the use of fenfluramine and analogues in Dravet and refractory epilepsy syndromes.

 Lieven Lagae is the immediate past President of the European Paediatric Neurology Society

(EPNS) and the current Treasurer of the International Child Neurology Association (ICNA).

He published more than 250 scientific papers and is the editor of the McKeith Press book on “Cognition and Behaviour in Childhood Epilepsy”. He serves at several scientific journal editorial boards and pharma company advisory boards.

He received the ‘Cures within Reach Patient Impact Clinical Award’ in 2017, the 2019 Honorary Award of German speaking Pediatric Neurology Society and the 2019 Aicardi Award of the EPNS.

Professor of Neurology and Pediatrics
David Geffen School of Medicine at UCLA
Ronald Reagan UCLA Medical Center
University of California, Los Angeles

Dr. Perry Shieh is a neuromuscular neurologist at the Ronald Reagan UCLA Medical Center. He is currently Professor of Neurology and Pediatrics and has served as the Director of the Neuromuscular Program at the David Geffen School of Medicine at UCLA.  He graduated from the Johns Hopkins University School of Medicine with an MD and Ph.D. in Neuroscience.  He then completed his residency in Neurology at Stanford University Medical Center before completing a fellowship in clinical neurophysiology specializing in Neuromuscular Diseases/EMG at Brigham & Women’s Hospital. He holds certification in Neurology, Clinical Neurophysiology, and Neuromuscular Medicine through the American Board of Psychiatry & Neurology.

His clinical interests include muscular dystrophy, spinal muscular atrophy, myasthenia gravis, inflammatory myopathy, and autoimmune neuropathies.

PROFESSOR OF PAEDIATRIC NEUROMUSCULAR DISEASES

I am Professor of Paediatric Neuromuscular Diseases at the MDUK Oxford Neuromuscular Centre and Invited Professor of Child Neurology at Liège University.
After graduating from Louvain Medical School, Brussels, Belgium in 1999, I completed a PhD in Neuroscience (cerebellar electrophysiology in alert living mice) from Free University of Brussels, Belgium, followed by residencies in child neurology at the Free University of Brussels and Robert Debré Hospital, Paris. In 2008, I took a position in neuromuscular disease and clinical research at the Institute of Myology in Paris, where my interest and expertise in neuromuscular diseases flourished. I was subsequently appointed Head of Clinical Trials and Database Services. Most recently, I served as Head of the Institute of Myology’s I-Motion (Institute Of Muscle-Oriented Translational Innovation), and Head of the Neuromuscular Centre in Liège, Belgium. I have joined MD UK Oxford Neuromuscular Center and the University of Oxford in September 2019.
I have been involved as principal investigator in numerous clinical trials to test treatments for Duchenne muscular dystrophy and spinal muscular atrophy (SMA).
I am the leader of the newborn screening program for SMA in southern Belgium where we are conducting a medico-economic analysis of newborn screening. My main research expertise covers the development of innovative outcome measures, including connected devices for real-life patients’ evaluation.