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10:00-12:30
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Professional group meetings:
CF Center physicians- Open to all Physicians
CF nurses
CF dieticians
CF psychologists and social workers
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12:30-13:30
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Light Lunch
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Congress opening and greetings
Session A: Patient evaluation tools & CFTR Function
(Session conducted in English)
Chairs: Dr. Malena Cohen-Cymberknoh, MD, and Prof. Hanna Blau, MBBS
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13:30-13:35
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Welcome and Introduction
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13:35-13:45
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Clinical and research opportunities of LCI measurements in CF
Oded Breuer MD, CF Center, Hadassah Medical Center, Mt. Scopus, Jerusalem
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13:45-13:55
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What does LCI add to the management of CF?
Patrick Stafler, MD, Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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13:55-14:05
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Panel Discussion - The Role of LCI in CF: Research tool or every day use?
Lea Bentur, Hanna Blau, Eitan Kerem
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14:05-14:20
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Electrophysiological tests in CF diagnosis: Nasal Potential Difference is more predictive than sweat test.
Hana Goldstein Dropiyvsky, MD, Hadassah Medical Center, Mt. Scopus, Jerusalem
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14:20-14:35
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Inspiratory Capacity in Cystic Fibrosis – A silent predictor of lung deterioration.
Daphna Vilozni, PhD, The National Center for CF, Edmond and Lily Safra Children's Hospital, Chaim Sheba Medical Center, Tel Hashomer
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14:35-15:05
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Respiratory and metabolic consequences of vitamiv D deficiency
Noah Lechtzin, MD, M.H.S, Assistant Director , Adult Cystic Fibrosis Program, Johns Hopkins Hospital, Baltimore USA
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15:05-15:35
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Exercise and physical activity in CF: the secret of success
Larry C. Lands, MD, PhD, Director, Pediatric Respiratory Medicine & Cystic Fibrosis Clinic, McGill University Montreal, QC Canada
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15:35-16:00
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Coffee Break and Exhibition
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Session B: Multidisciplinary CF Care
Chairs: Dr. Moran Lavie, MD and Dr. Rachel Friedman
(Session conducted in Hebrew)
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16:00-16:15
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Sleep in CF
Joel Reiter MD, CF Center, Hadassah Medical Center, Mt. Scopus, Jerusalem
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16:15-16:30
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Sleeping with end stage lung disease in Cystic Fibrosis
Lavie Moran, MD, The National Center for CF, Edmond and Lily Safra Children's Hospital, Chaim Sheba Medical Center, Tel Hashomer
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16:30-16:45
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Coping with a second diagnosis in a CF adolescent
Edwina Landau, PhD, Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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16:45-17:00
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The use of “tele-health” (text messaging and video communications) for
patients with cystic fibrosis: A pilot study
Michal Gur, MD, Ruth Rappaport Children's Hospital, Rambam Health Care Campus
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17:00-17:15
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...."But I know him since he was 12 years old": Adult patients- what else can we learn about them?
Shifra Kurtz, MSW, CF Center, Hadassah Medical Center, Mt. Scopus, Jerusalem
Mery Fasja, MSW, The National Center for CF, Edmond and Lily Safra Children's Hospital, Chaim Sheba Medical Center, Tel Hashomer
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17:15-17:35
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A patient support group to improve adherence & coping strategies for adult Cyctic fibrosis patients who are working or participate in higher education
Rachel Friedman,PhD, and Michal Shteinberg, MD, PhD, CF Center, Carmel Medical Center, Haifa
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17:35-17:55
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Keeping Secrets- Challenges for CF Patients and Families
Shoshi Palmor Haspel, PhD, CF Center, Hadassah Medical Center, Mt. Scopus,
Jerusalem
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Friday 11th November, 2016
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07:30-08:30
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Registration
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Session C: CFTR from "bench to bed side "
Chairs: Prof. Lea Bentur, MD and Prof. Michael Wilschanski, MD
(Session conducted in English)
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08:30-08:45
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CFTR functional measurements correlate with clinical improvements in CF patients with non G551D gating mutations treated with Ivacaftor
Michal Shteinberg, MD, PhD, CF Center, Carmel Medical Center, Haifa, Israel
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08:45-09:00
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The Israeli CF Registry Annual Data
Meir Mei Zahav, MD, Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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09:00-09:20
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Respiratory tract organoids in stem cell treatment of CF
Chava Rozen, MD, Dept. Immunology, Weizman Institute of Science, Rehovot
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09:20-09:50
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Lung and Hematopoietic stem cell transplantation in CF mice
Yair Reisner, PhD, Immunology, Weizman Institute of Science, Rehovot
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| 09:50-10:10 |
"Targeting inflammation-is it safe?"
Malena Cohen- Cymberknoh, MD, CF Center, Hadassah Medical Cebter, Jerusalem
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10:10-10:40
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Playing with fire without getting burned: controlling inflammation in CF
Larry C. Lands, MD, PhD, Director, Pediatric Respiratory Medicine & Cystic Fibrosis Clinic, McGill University Montreal, QC Canada
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10:40-11:10
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Can we eradicate resistant organisms?
Noah Lechtzin, MD, M.H.S, Assistant Director , Adult Cystic Fibrosis Program, Johns Hopkins Hospital, Baltimore, USA
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| 11:10-11:40 |
Coffee Break and Exhibition |
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Session D: The Israeli experience with CFTR restoring therapies
Chairs: Dr. Micha Aviram, MD and Dr. Galit Livnat, MD
(Session conducted in Hebrew)
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11:40-12:00
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The Ivacaftor experience in Israel
Galit Livnat, MD, CF Center, Carmel Medical Center, Haifa & Adi Dagan, MD, The National Center for CF, Edmond and Lily Safra Children's Hospital, Chaim Sheba Medical Center, Tel Hashomer
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12:00-12:15
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The Israeli experience with Orkambi
Dario Prais, MD, Graub CF Center, Schneider Children's Medical Center,
Petah Tikva
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12:15-12:25
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A remarkable off-label response to Ivacaftor
Hannah Blau, MBBS, Graub CF Center, Schneider Children's Medical Center,
Petah Tikva
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12:25-12:35
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CFTR restoring therapies and Allergic Bronchopulmonary Aspergillosis
Huda Mussaffi, MD, Graub CF Center, Schneider Children's Medical Center,
Petah Tikva
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12:35-12:50
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Omalizumab in Allergic Bronchopulmonary Aspergillosis in patients with Cystic Fibrosis
Moshe Ashkenazi, MD, The National Center for CF, Edmond and Lily Safra Children's Hospital, Chaim Sheba Medical Center, Tel Hashomer
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| 12:50-13:10 |
Emerging Therapies for CF Liver Disease
Michael Wilschanski, MD, CF Center, Hadassah Medical Center, Mt. Scopus, Jerusalem
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13:10-13:25
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Yes or no to NO
Lea Bentur, MD, and Karin Yakoby-Bianu, MD, Ruth Rappaport Children's Hospital, Rambam Health Care Campus
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| 13:25-13:35 |
Achromobacter xylosoxidans in CF patients: prevalence and clinical significance (The Schneider Experience)
Ophir Bar-On, MD, Graub CF Center, Schneider Children's Medical Center, Petach Tikva
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| 13:35-13:50 |
Nation-wide genetic analysis for molecularly unresolved cystic fibrosis cases in a multi-ethnic society: Implications for pre-conception screening and post-natal diagnosis
Ori Inbar, PhD, The CF Foundation, Israel
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13:50
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Lunch
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